I’ve written before about my friend and the situation she
and her family have been plunged into since her father was diagnosed with
Alzheimer’s Disease about four or five years ago. The way problems escalate is now, sadly, a common scenario facing hundreds of thousands of families around the USA and across the world. I have seen the situation take its toll on
her, particularly in recent months as she struggles to find an “affordable”
place for her father to spend his days, especially as he now requires the support
offered in a special “memory care” unit.
No, don’t switch off, thinking “Well, we’ll be fine, we’ve saved for
every eventuality” – because it has become apparent to me that, unless you are
in receipt of Megamillions lottery winnings or a sizeable trust fund, you may
well not be fine.
Let me refresh your memory: My friend’s parents are like
many of their generation. They worked hard, they bought a house, they raised
two girls, both of whom worked their way through college and have built careers. And along the way my friend and her sister
took on board their parents’ ethos of saving for the future, not spending
beyond one’s means and just getting on with having a good life – not a life
marked by great wealth or outrageous adventure.
Just a good life – and who could ask for more?
In the past several months my friend and her sister have
come close to breakdown. Because her
parents live a few hundred miles away, and her sister – who lives closer – is a
schoolteacher, they divvied up the tasks to try to gain support for their
parents. Every day my friend made the calls to various
homes and elder care services, and after school had ended, her sister
visited the places where an appointment to view had been made by my
friend. She made hundreds of calls each week
(and I am not exaggerating) – multiple calls to many places; getting
information, often being given incorrect information. Many times when she thought she'd found a good, affordable
place, so her sister went along to see it, only to find it filthy, with ill-kempt
patients, some screaming or sitting in their own waste. Oh, and these places are charging
thousands of dollars per month. You see,
getting old is like cancer – it’s big business - and there are whole
corporations making big profits from our distress. The really nice facilities were over $7,000
per month. A couple of weeks ago my
friend thought she had landed the perfect home for her father – full “memory
care” and there was a room available, plus they could just about afford it if
my friend and her sister both delved into their savings to augment their
parents’ savings. They were told they
had one room and it was being reserved for them. My friend’s sister rushed over during her
lunch break – but someone else had turned up first with a check – and there was no more
room at that particular inn.
Everything well-meaning people have suggested (“Try this …
try that … call this person, speak to this organization) has either already
been explored or there was nothing they could do for the family. My friend has gone back to the VA numerous
times to see if they can offer more assistance – her father is a veteran of the
Korean War – to no avail. I mentioned the situation on my Facebook page, and so many people graciously posted their ideas and sources of information. I passed it on to my friend - she had already exhausted pretty much every option.
The truth of the matter is that her parents thought they
were saving enough money for their future and had the right financial contingency plans in place, but the future just became more and
more expensive as time went on. And it’s
not going to get any cheaper. Remember
that, when you think you have enough to see you through to your old age. I read an op-ed column last year,
where the writer said (I’m paraphrasing here), “The trouble with the Boomers is
that they assume old age is a constant 75, and they think it will be the new 50. And 75 can be pretty good – people are doing
more things than ever before at that age.
But 75 is not 80 and it’s not 85 – and most of us are not prepared for
what happens in our 80’s.”
My dear friend is exhausted beyond measure. She eventually pretty much gave up her job –
because doing all the work necessary to find a future home for her parents (her
mother now has severe health issues) and making trips to care for them was just
too darn hard and took up all of her time.
Today I learned that she and her sister have had to break the news to
their mother that the only way forward is to sell their parents’ very modest house. She has found a room for them to share in a
residential home that has a memory care facility as well as assisted living –
so her mother will be able to sleep in the same room as her dad, and they will
go their separate ways during the day.
She and her sister will continue to augment their parents’ care with
their own retirement savings. And of
course, by selling the house they have to get advice on how to avoid capital
gains tax – yet that money, all of it, will be needed to care for her parents. When her father dies - and, in truth, it probably it won’t be too
long – they will decide whether they can afford to keep her mother in assisted living over the longer term –
which she needs – or bring her home to one of their houses. Needless to say, they don’t have mansions,
plus her sister has three strapping boys who take up a lot of space.
This is the truth of what is facing so many ordinary people.
Not spendthrifts, not people who have lived high on the hog their entire lives.
Just ordinary people who grew old and needed a bit more help than their money or their insurances could buy.
I told my friend this morning that it was all making me
wonder what one had to do to prepare for the future. Despite all the “Work Out Your Retirement
Needs” tables available at banks and online, how much would be enough to see you through? And how do you balance being fiscally
responsible, and having a little fun with your money in the here and now? “I know what I’m going to do,” she said. “I’m going to check myself out when I’ve had
enough – it might be 70, 75 or 80 – but
I am not going through this terror myself.
I would rather be dead.”
As we Boomers draw closer to our late 70’s and into our
80’s, there are going to be more of us needing care, and probably more of us
making that decision – that it is all too darn hard to go on, and we never knew
things would cost that much (today’s $7000 a month will be over $10,000 for a
room in a modest long term care facility very soon – and I fear that someone
will tell me we’re there already).
I have always believed that a country that could not or would
not take care of its people is a very poor country indeed. You cannot have a big old rich crust on top
of such a weak pie. I don’t have the
answer, and I wish I could come up with something – in fact, every time I talk
to my friend (pretty much every day), I wish I had a brilliant idea for
her. Knowing the many avenues she has explored, I cannot insult her any more with my "Try this or that" suggestions. We should not let our senior
population, and those who care for them continue to suffer in this way. It is beyond cruel, and it is no way to live
in this world.
You touched on the greatest fear of many of us. Great post, Jackie.
ReplyDeleteJim
from Jacqueline: It is a great fear - you can do your best, you can get what you think is good financial advice and then ... you can be out in the cold with nothing. Or in a very unfriendly place with inadequate care.
DeleteSadly, the key to this is in your early paragraph: big corporations, big profits. It doesn't cost even half what is charged for this care, but what's charged is what the market will bear, and those who can't pay are just left out. It's terrifying to think that within 10 years (I'm 70) my wife could be facing this, I have no children to pick up costs, and though I was always the saver, the amounts set aside melt away when health care is involved. Very good, but saddening post.
ReplyDeletefrom Jacqueline: I think the words "the amounts set aside melt away ..." sum up the situation so many people are in. They did what they thought was right, but elder care is now big business. A few years ago one of my friends went to work for a consulting firm that advised companies on how they could make millions of $$$ from the massive leap in the number of people reaching their senior years - and of course, admission to some sort of care facility is destined to drain your savings at warp speed. Sad.
DeleteI've been through all this, having taken care of my disabled mother for eight years after my dad died. Toward the end, she not only needed assisted living but also private caregivers during the day. One of the biggest lies I told her when she asked me if she would run out of money, was "no, of course not."
ReplyDeletefrom Jacqueline: Oh Patty, you made my heart ache - I can just imagine you reassuring your mother that she had enough money. It was my mother-in-law's fear too (she died at age 93) - she was always saying, "I wish I could just pop my clogs now."
DeleteGreat post! This compelled me to think about my future even if it is 40 to 50 years from now. Before I know it, I will be there! I also recall a major news story several years ago about a place in the South Bay Area that did not pay their workers and they walked off leaving behind elderly people in need of care. The only workers who stayed to help despite no pay nor training were the janitors!
ReplyDeletefrom Jacqueline: From all the responses to this post, both here and the many on FB, it seems the best thing you can do is save, save, save. And even then, as you clip towards your seventies, you are in very foggy territory regarding how you will care for yourself or be cared for as time goes on. Most people think of "saving for retirement" - but your 80's should be way beyond retirement - and that means saving for Old Age, which of course most of us do not want to admit will exist for us! Let us hope that the future holds a more kindly outcome for people as they age, so that it might comes to pass with grace, comfort and freedom from fear.
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