My best friend is in the
midst of a dilemma facing so many of us at the present time, albeit in
different guises – for some time now, she has spent many hours on the
‘phone each week trying to sort out issues pertaining to the health and wellbeing of her
aging parents. In addition, a couple of
times each week she checks in with her sister – a full-time teacher and also
mother to three boys, who lives closer to her parents – to discuss
“strategy.” Their father has Alzheimer’s
disease, and broke his hip in a fall about a month ago at the residential
center where he had been living for some months. This was not the first institutional care
situation for him. Her mother is unable to get about outside the house, and as
she has limited mobility, even with assistance there reached a point where she
was unable to cope with her husband’s illness.
In addition to his physical and psychological challenges, he is also an
escape artist.
My friend’s parents have both
worked their entire lives, plus my friend’s father is a veteran of the Korean
War. They have their own home, and
struggled to give their daughters a fair start in life – doesn’t every
generation want to give their children something better than they had? So, they’re pretty much your ordinary
middle-class American family. They have
never been profligate with money – they bought a house and have savings - but it’s
tragic, how they have struggled to afford the care they both need, especially
now that the savings are almost gone, spent on the very specific support my friend's father requires. My friend has spent hours on the ‘phone
to the VA, to Medicare, to different care homes, checking their rates and what
they offer - she and her sister liaise all the time, trying to work out what’s
best and what they can contribute. In one care home, their father was not given
his correct medication for diabetes or the Alzheimer’s. In another, no one
checked on him and he walked out of the premises with some regularity, putting his life in danger - and, indeed, other lives. When her mother complained about the terrible
lack of care at the incredibly poorly run rehab facility (where her father had been taken following his fall) - because the management’s
promises had been far from reflected in the sub-standard operation – an over
zealous nurse called the police - who were left scratching their heads when
faced with a female senior citizen who could not walk, and who only wanted to question
why her husband was not being properly cared for, why he had been allowed to
fall several more times while in a place where he was supposed to be healing,
and where he was not receiving his pain medication. The rehab facility also discharged him two
days early, when was in a wheelchair and unable to move around - the family were still scrambling to find another place for him to go at that point. And that is just the tip of their iceberg. More importantly, it is also just the tip of
our collective iceberg.
You know the drill when
you’re flying – in an emergency decompression, you put your own oxygen mask on
first before you try to help anyone else. It makes sense, and the analogy has
been used in so many areas of life – if you’re weak or compromised, how can you
begin to be of service to another? Yet,
despite all best efforts, our country’s leaders – of any stripe – seem to throw
a lot of money around on supplying oxygen masks overseas. And before I am accused of being isolationist
or unable to see the big picture, I understand there is good reason for
international expenditure on several levels – protect the world, and we protect
ourselves. But I also remember reading a
statistic during the first several months of the Iraq war, that the cost of
that war itself, even in those early months, could have put every kid in America
through college, to say nothing of how much healthcare could have been provided.
There is absolutely a place
for overseas aid, and there is a case for protecting our national security, and
a case for international outreach – but for heaven’s sake, we are sitting on a time
bomb here that universal health care is just not addressing. And I am sorry – there is still no such thing
as affordable health care in America. What
we have is, for some, more affordable insurance options, but what with the
deductibles, and the co-pays and the other small print, it’s not working out as
affordable, and is still a major headache for a very significant percentage of
the population. Mind you, in fairness,
it’s early days yet – though let’s not even get started on the cost of long
term care insurance.
My friend and her family are
currently the victims of domestic terror – and that terror is the truth what is
happening to their family and the strain on the fabric of their lives. They’ve reached Code Red, and it is happening
to families across the US, and it will not ease given the great numbers
reaching their golden years and therefore more susceptible to compromised
physical ability, and perhaps to age-related psychiatric illness. I read just recently that the Baby Boomer
generation (and I’m one of them) had assumed they would swan through being
seniors, envisioning themselves as always active and vital – but they tend to
think about "senior" as being perpetually in their 70’s, rather than looking at the
reality of what comes next. As the
commentator said, “They don’t know how things change again when you get into
your 80’s, and everything gets even harder, and you need more help.” Many of those boomers are not only now faced with their own challenges, but those of their very senior parents.
Both my friend and her sister
have already compromised their work and home life while sorting out problems
with their aging and unwell parents, and they’ve both suffered illness directly
attributable to worry – so I think it’s time to address this form of
domestic terror afflicting a great many families. And what do we do to fight any sort of terror? We commit a very serious budget to easing the
threat, the risk, the pain, the strain and the stress. It’s time to put on the oxygen mask at home. A country that does not take care of its own
renders itself a very weak country indeed.
I have said for years that I would not be happy until there was a true universal one payer health care plan for the USA. I think we have a start, but there are too many trying to take away even basic health care if you are middle class. In an industrialized country what we have is unacceptable. Medicare for all!
ReplyDeletefrom Jacqueline: Gram - some sort of real universal non-profit related healthcare system would be incredible here, but it seems too many people in too many corporations are making a lot of money out of ill-health.
DeleteIf you believe Medicare will help with alzheimers, you are in for a horrific surprise.
ReplyDeletefrom Jacqueline: Indeed, you're right there!
DeleteI'm in the San Juan Islands on a boat so I'm not sure if this will post but...
ReplyDeleteI have been through theses wars. The stress is overwhelming. I now have long term care insurance. It's expensive and hopefully I'll never need it but after experiencing what happened to my parents, I see no alternative. Patty
from Jacqueline: I've been thinking about it, but keep wondering whether I'm just buying into the great insurance safety myth - and there always seem to be so many whys and wherefores in the small print. But the San Juan islands - oh how lovely!!
DeleteAgree with Gram's statement about one payer system. No, Medicare isn't perfect, but without it, where would our elderly be? It should have been made universal.
ReplyDeleteLower the age for Medicare.
ReplyDeletefrom Jacqueline: It would have been so easy - in comparison to all the shenanigans that went on - to just extend Medicare over a period of years, to provide universal healthcare coverage from cradle to grave. That would have allowed for bulk purchase of medications (so prices could be kept down, but the drug companies would have a fit), and bring a truly non-profit provision to healthcare - which should never be subject to the whims of shareholder interests. So, taxes would have increased - but I bet by less than most people are paying for their insurance!
ReplyDeleteYes, healthcare here in the State is still a nightmare because it's still in the hands of for-profit insurance companies. I agree with your post wholeheartedly.
ReplyDeleteEr, States, I meant. *blush*
Deletefrom Jacqueline: Thank you for your comment, Missie (and we knew you meant "States" !!).
ReplyDeleteThank you, Jacqueline :-) By the way, my hubby and I (and my mom!) are big fans of your Maisie Dobbs books. My hubby and I have had a difficult year (long story VERY short and with just the highlights -- we are self-employed, hubby suffered a compression fracture of one of his vertebrae in February of this year, we had to put our cat of 16 years -- had her from a kitten -- down, and then my mom suffered a major heart attack on our living room floor, suffered two more attacks after that, and now is in congestive heart failure)...and all of this during a necessary and overdue remodel of a functional room in our home and also a necessary re-roofing project on our home.
DeleteBelieve me, we've had our share and then some of health care frustration this year, too, as has your friend. And while, as self-employed individuals, we're grateful to have "affordable" health insurance, it still means our health care is driven by what the for-profit health insurance companies will allow. :-/
But my hubby and I (who live in a rural area on 25 acres where folks tend to feel it's alright to dump strays *sigh*) were selected about a month ago by a stray puppy (about 5 months old now) dog. Our vet's best guess is that she's part Jack Russell and part(s) whatever else terrier.
My hubby and I aren't normally "small" dog people, but this pup has a big heart and has won our hearts (and in a year that has been awful for us).
When we realized nobody was claiming her as lost or likely to claim her and that she could be "ours," we bandied about lots of names for her, but after several days, we decided to name her "Maisie Dobbs"...because she's beautiful, scrappy, smart, and independent.
I do hope hope you'll take that as the compliment it is meant to be. :-)
from Jacqueline: Missie, may that new pup bring you much joy, contentment and a lot in the way of laughter - you deserve it. I think we've all gone through those times when you think, "Now what???" and you long for a light at the end of the tunnel (I had one of those in 2012) - may Maisie be the light of your lives.
DeleteThank you very much -- we're hoping the same with Maisie (and thus far, she has been -- even our other cat, Scraggles -- thus named because she was the scraggliest, sorriest looking feline we'd ever seen when she showed up here a couple of years ago and asked for our help), has warmed up to Maisie and they've moved from tolerating each other to what is looking as though will turn into a friendship :-)
DeleteI remember your documenting your awful year...thank you for your inspiration, both through your fiction and your non-fiction posts.